SWAN UK is an initiative of the charity Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions.
From May 2016, SWAN UK need £18,000 a year to cover the direct costs of our UK-wide programme of meet-ups, parties and outings for SWAN UK children and their families.
Over a year, our local parent volunteers will organise up to 60 family meet-ups, parties and outings, with support from SWAN UK Communication and Support Officer.
SWAN UK family events give children with undiagnosed genetic conditions and their brothers and sisters a rare opportunity to have fun and meet other children in a safe environment, where their needs are understood. They also give parents and carers the opportunity to share their experiences with other parents and carers of children with undiagnosed genetic conditions in a relaxed and supportive setting.